Our Team | The Children's Rare Disorders Fund

Our Team

100% of all donations is directed to the research of cures. Operational costs are financed separately.

CEO, Co-Founder

CFO, Co-Founder

Co-Founding Board Member

VP, Bank of America

Jihan Bowes Little

Business Advisor

Founder, Bracket Capital

Stephen Squinto

Business Advisor

Chief Investment Officer, Life Sciences Private Capital,
J.P. Morgan Asset Management

Charity Advisor

Founder, Clif Loftin Creative

Business Advisor

Venture Builder/Investor

Head of Science

Prof. Dr., University of Freiburg

Stormy Chamberlain

Science Advisor

Section Head Neurogenomics, Roche

Erin P. Mullen, Esq.

Attorney, Morelli Law Firm PLLC

Michele Cea, Esq.

Principal, CEA Legal PC

Lauren Ceravolo

Marketing & Public Relations Lead

Strategic Partnerships Director, GOOP

Research Manager, Boston Children's Hospital

Medical Assistant, Carmel Pediatrics

Intern, Social Media

Student, The New School, NY

Intern, Editorial

Student, University of London, England

Medical Partners

Our partnering doctors and scientists manage current and potential research projects. We contribute funding to their projects, not to them directly.

Brenda L. Banwell, MD

Chief, Division of Neurology

Children's Hospital of Philadelphia

Guangping Gao, PhD

Co-Director, Li Weibo Institute for Rare Diseases

UMass Medical School

Soo-Kyung Lee, PhD

Neurodevelopmental Biologist, The Lee Lab

University of Buffalo

Brian Bettencourt, PhD

Entrepreneur-in-Residence

Third Rock Ventures

Jill Silverman, PhD

Professor, MIND Institute and Dept of Psychiatry and Behavioral Sciences
Director, MIND IDDRC Mouse Behavioral Core

University of California, Davis

Joseph Anderson, PhD, MAS

Associate Professor, Dept. of Internal Medicine

University of California, Davis

Vladimir Yudachevk

Lab Manager, Blavatnic Center for Drug Discovery

Tel Aviv University