Our Team | The Children's Rare Disorders Fund

Our Team

100% of all donations is directed to the research of cures. Operational costs are financed separately.

CEO, Co-Founder

CFO, Co-Founder

Co-Founding Board Member

VP, Bank of America

Jihan Bowes Little

Business Advisor

Founder, Bracket Capital

Stephen Squinto

Business Advisor

Chief Investment Officer, Life Sciences Private Capital,
J.P. Morgan Asset Management

Charity Advisor

Founder, Clif Loftin Creative

Business Advisor

Venture Builder/Investor

Head of Science

Prof. Dr., University of Freiburg

Stormy Chamberlain

Science Advisor

Section Head Neurogenomics, Roche

Erin P. Mullen, Esq.

Attorney, Morelli Law Firm PLLC

Michele Cea, Esq.

Principal, CEA Legal PC

Lauren Ceravolo

Marketing & Public Relations Lead

Strategic Partnerships Director, GOOP

Research Manager, Boston Children's Hospital

Medical Assistant, Carmel Pediatrics

Intern, Social Media

Student, The New School, NY

Our Platinum Donors

We couldn't do what we do without our donors.
We are very grateful for their generosity.

Kamal Sandhu, Megan Nolan and Family
John and Maria Laffin and Family
The Pangelov Family
Isabel Cuturi and Family
Oleg Sarzhin and Family
Badr Alami and Family

Medical Partners

Our partnering doctors and scientists manage current or potential research projects. We contribute funding to their projects, not to them directly.

Brenda L. Banwell, MD

Chief, Division of Neurology

Children's Hospital of Philadelphia

Ethan Perlstein, Phd

Mathura Thevandavakkam, PhD

Director, Drug Repurposing

Jill Silverman, PhD

Professor, MIND Institute and Dept of Psychiatry and Behavioral Sciences
Director, MIND IDDRC Mouse Behavioral Core

University of California, Davis

Joseph Anderson, PhD, MAS

Associate Professor, Dept. of Internal Medicine

University of California, Davis

Vladimir Yudachevk

Lab Manager, Blavatnic Center for Drug Discovery

Tel Aviv University