Support Rare Disease Day 2023 with
The Children's Rare Disorders Fund

100% of ticket sales fund
research to cure rare disorders.

rare disorders
worldwide

without a
treatment or cure

children affected
by rare disorders

do not survive
to their 5th birthday

rare
disorders
worldwide

without a
treatment
or cure

children
affected by
rare disorders

do not survive
to their
5th birthday

Funding Research for FOXG1 Syndrome

The Children's Rare Disorders Fund is dedicated to curing rare genetic disorders through funding research and development of treatments, beginning with FOXG1 Syndrome.

Learn about our inspiration here.

Funding Research for FOXG1 Syndrome

The Children's Rare Disorders Fund is dedicated to curing rare genetic disorders through funding research and development of treatments, beginning with FOXG1 Syndrome.

Learn about our inspiration here.

Did you know?

100% of your donation is directed to the research and development of cures.

We don't take salaries, and our underwriters cover all unavoidable costs, ensuring your donation doesn't.

Learn more about this

Our Current Focuses

Stem Cell Therapy

Repurposed Drugs

About Us

Our Inspiration

Following a dramatic series of seizures requiring hospitalization, Domenico Sandhu was diagnosed with a rare genetic disorder called FOXG1 Syndrome, at 16 months old. Domenico's doctors explained that his...

FOXG1 Syndrome is a rare genetic disorder usually caused by a "de novo," or spontaneous, non-inherited mutation of the FOXG1 gene. It is thought to happen at or just before conception, within a sperm or egg. In rare cases...

We have come together to find a cure for FOXG1, and as many other rare disorders as possible.
We are working as volunteers and advisors, and remain unpaid, making your donation go further.

There are more ways than one to get involved!
From donating to starting your own fundraising page, or creating a fundraiser on Instagram and Facebook, there are many ways to contribute to our cause.

Get Involved Today!