The Children’s Rare Disorders Fund is dedicated to funding gene, stem cell and drug therapy research aiming to cure FOXG1 Syndrome. Children with FOXG1 often are unable to walk, talk, sit-up, feed themselves, nor do much of what we take for granted every day. They often undergo multiple major surgeries. 30% of children with FOXG1 do not live to their 5th birthday. Most don't make it to age 30. Founded by friends of OSF, who are parents of a toddler affected by FOXG1 Syndrome, The CRD Fund is one of the few charities in the world in which 100% of every donation is directed to the cause. All overhead is financed separately.

The Children's Rare Disorders Fund is a U.S. tax-exempt 501(c)3 non-profit organization and a tax-exempt U.K. charity.