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The CRD Fund + FOXG1 Deutschland

The Children's Rare Disorders Fund_Domenico Sandhu
The Children's Rare Disorders Fund has partnered with FOXG1 Deutschland in order to combine resources, as we work towards curing FOXG1 Syndrome. We are very pleased to announce Tanja Vogel has joined our team as Head of Science.

About The CRD Fund: Founded by parents of a toddler affected by FOXG1 Syndrome, The Children's Rare Disorders Fund is dedicated to finding a cure for FOXG1 Syndrome. The CRD Fund hopes to one day replicate successes across many more rare genetic disorders.

How We Operate: Simply put, we vet potential FOXG1 research projects and make grants to either begin new research or continue current research, for promising projects in need of additional funding in order to continue.
900
known cases of
FOXG1 worldwide
6-8 years
average time for
a diagnosis
6-8 years
average time for
an accurate diagnosis
0
available cures
or treatments
30%
do not survive
to their 5th birthday
How We Collect Funds: We collect funds primarily through private donors around the world, like you! The CRD Fund is one of the few charities in the world in which 100% of every donation is directed to the cause - in this case, to the research of cures and treatments for FOXG1. We then turn around those donations to fund research projects.

How We Partner with FOXG1 Deutschland: FOXG1 Deutschland has the opportunity to join us in funding any or all of our potential research projects. We are in regular contact with Tina Kouemo and the team, keeping them aware of the details behind all potential projects. You may choose to donate directly to FOXG1 Deutschland, who will keep you aware of what your donation has helped to fund.

Current Research: The CRD Fund is currently exploring opportunities within gene therapy, stem cell therapy and drug therapy. We are in need of funding in order to begin research, and would like to fund multiple projects. Learn more about our potential projects here.


Thank You!

Children with FOXG1 Syndrome are often neurologically and physically disabled. They are often unable to walk, talk, feed themselves, nor do much of what we take for granted every day. Your generosity means we can fund research dedicated specifically to cures and treatments for FOXG1 Syndrome. Thank you for joining us in our fight to cure our children.