Soo-Kyung Lee awarded $1.5 million to study FOXG1 at the University of Buffalo

The Children's Rare Disorders Fund is dedicated to finding a cure for FOXG1 Syndrome, and replicating successes across as many rare genetic disorders as possible through funding gene, stem cell and/or drug therapy research. Children with rare disorders are often neurologically and physically disabled. They are often unable to walk, talk, feed themselves, nor do much of what we take for granted every day. Founded by parents of a toddler affected by FOXG1 Syndrome, The CRD Fund is one of the few charities in the world in which 100% of every donation is directed to the cause - in this case, to the development of cures and treatments.